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Published 28 January 2022
© Crown copyright 2022
This publication is licensed under the terms of the Open Government Licence v3.0 except where otherwise stated. To view this licence, visit nationalarchives.gov.uk/doc/open-government-licence/version/3 or write to the Information Policy Team, The National Archives, Kew, London TW9 4DU, or email: firstname.lastname@example.org.
Where we have identified any third party copyright information you will need to obtain permission from the copyright holders concerned.
This publication is available at https://www.gov.uk/government/publications/individual-placement-and-support-ips-ad-trial-privacy-notice/privacy-notice-for-the-individual-placement-and-support-for-alcohol-and-drug-dependence-trial
Individual Placement and Support (IPS) supports people with health conditions into paid employment. Between 8 May 2018 and 31 March 2021, Public Health England (PHE) ran a randomised controlled trial of IPS in community alcohol and drug treatment services. The study is called Individual Placement and Support for Alcohol and Drug Dependence (IPS-AD).
The trial took place in 7 local authority areas, and involved adults in drug or alcohol treatment who were currently unemployed or economically inactive.
The trial monitored several outcomes, including:
In October 2021, the team that ran the trial transferred from PHE to the Office for Health Improvement and Disparities (OHID) in the Department of Health and Social Care (DHSC).
If you took part in the IPS-AD trial, you were told about the information we collect and how we will use it. We also asked you to give your informed consent after reading participant information.
We collect your data to carry out analysis of the different outcomes that the IPS-AD trial monitors, which are listed above. The analysis will look at the changes in these outcomes as you went through the trial.
DHSC is the data controller of the trial data. This means that DHSC has overall control over what is done with the data.
We will collect data about individual participants in the IPS-AD trial from several sources, as outlined below.
We will collect the following types of personal data about you:
We will also collect special category data, which is personal data that needs more protection because it’s sensitive. The special category data we use is information about:
You can read more about special category data at the Information Commissioner’s Office website.
We collect data about you from different sources. These include:
Data protection legislation requires us to have a valid legal reason to process and use personal data about you. This is often called a ‘legal basis’.
UK General Data Protection Regulation (UK GDPR) requires us to be clear with you about the legal basis we rely on to process information about you. The legal bases we rely on for processing this information are from GDPR articles 6 and 9:
processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller” Article 6(1)(e)
the processing is necessary for reasons of public interest in the area of public health (for example, ensuring the safety of medicinal products)” Article 9(2)(i)
the processing is necessary for archiving purposes in the public interest, for historical, scientific, research or statistical purposes, subject to appropriate safeguards” Article 9(2)(j)
Your information is likely to be shared within the project team. However, only people who are trained and work using a secure system will see any information that could identify you as a participant.
Most personal information used in research will have your name removed before sharing more widely, and all of it will have identifying information removed before publishing the research findings.
We need to share some information with other government departments and other organisations to help us to track the outcomes we are interested in. These are:
We will not keep your information for longer than necessary. We will keep trial data for 6 years from randomisation. You should have already been told this on the participant information sheet you got at the start of the trial.
After 6 years, DHSC will securely delete all identifiable data.
The other organisations involved in the trial all have their own time limits for keeping data, which you can find out about from each organisation.
DHSC securely protects the information it holds and has dedicated storage areas for research data, which have controlled access. There are also comprehensive policies and processes to make sure that users and administrators of DHSC information know their obligations and responsibilities for the data they have access to.
Our partners at DWP, HMRC, the Office for National Statistics, NHS Digital, RAND Europe, the Centre for Mental Health and King’s College London Clinical Trials Unit all have similar measures in place. They are used to working with sensitive personal information and keeping it safe.
There are no international transfers of IPS-AD data. All data is stored on hard drives located in the UK or servers located in the UK.
By law, you have a number of rights and processing your data does not take away or reduce these rights, under the UK General Data Protection Regulation and the UK Data Protection Act 2018.
You have the right to:
Some of these rights might not apply when the data is being used for research. We will let you know if this is the case.
There are also some circumstances in which we cannot delete your data. For example, if it has been anonymised and we cannot tell which data relates to you.
We will always try to respond to concerns or queries that you have about your data.
If you are unhappy about how your personal data is being used, or if you want to complain about how your data is used as part of this programme, you should email email@example.com or write to:
Data Protection Officer
1st Floor North
39 Victoria Street
If you are still not satisfied, you can complain to the Information Commissioner’s Office (ICO). You can find out how to contact them at the ICO website. Their postal address is:
Information Commissioner’s Office
If you want further information about the IPS-AD trial, please contact us at firstname.lastname@example.org.
This privacy notice is kept under review and will be updated if necessary. All updated versions will be marked by a change note on this notice’s publication page.
Don’t include personal or financial information like your National Insurance number or credit card details.
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